6th World Scleroderma Patient Congress
Announcement by FESCA of 6th World Scleroderma Patient Congress
Great news for all people with scleroderma! FESCA is delighted to announce that the next World Scleroderma Patient Congress, which takes place in Prague from March 5-7, 2020, will be live-streamed for access by all those who cannot attend in person.
The congress will feature talks and workshops by leading consultants and specialists from around the world, on topics of particular interest to patients. These topics are chosen for their relevance to the people with the disease, while topics of more specific interest to doctors, researchers, and scientists will be handled in the twinned congress for clinicians. Both congresses will be ongoing at the same time, in the same facility, but online registration procedures are different. Registration for the patient congress is subsidized to a low cost, and includes lunch on Friday.
The patient congress opens at 9 am on Friday 6 March and concludes at 1 pm on Saturday 7 March. However there are opening lectures for both patients and doctors together on Thursday 5 March, beginning at 17.30 pm, followed by a welcome reception at 20.00. Preceding this, FESCA is holding a Roundtable Meeting for leading personnel from scleroderma patient organisations worldwide. This will take place at 15.30 in the congress hall.
As part of the patient congress, there will be smaller sessions for men only, and for women only, to discuss sexual and other intimate concerns; and also sessions for the parents of children with scleroderma, and for young people who are dealing with the disease.
Translation is being organised for all sessions held in the main hall into the following languages, based on estimations of the number of patients attending from these countries: Czech, Hungarian, German, and Spanish. During the online registration process, you will be asked if you wish to rent ear-phones for this service.
Congress Registration is OPEN NOW at the following link, and those attending can also book hotels through the organising agency, AIM, at the same link.
news & events
We are happy to share with you the FESCA 2019 Newsletter. Read some inspiring stories from our members, and how they celebrated World Scleroderma Day 2019.
We invite you from all over the world to post a picture/video with smiles on social medias like twitter, facebook, instagram etc with the hashtag #ScleroSmile
PRESS RELEASE: European associations align in the battle against systemic sclerosis for World Scleroderma Day 2019