The Board of FESCA consists of four officers, who undertakes the general administration of the Federation. The board members are elected by the Council to serve a period of 3 years.
Ann Tyrrell Kennedy
Despo Charalambous Demetriou
World Scleroderma Day Manager 2020
FESCA, Federation of European Scleroderma Associations aisbl, acts at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. As an umbrella group, FESCA supports its member organisations, while the support of individual sufferers of scleroderma remains the sole remit of national organisations.
FESCA’s objectives include encouraging the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care.