About FESCA:
The Board
The Board of FESCA consists of four officers, who undertakes the general administration of the Federation. The board members are elected by the Council to serve a period of 3 years.
Board Officers
President:
Sue Farrington
UK
Vice-President:
Ilaria Galetti
Italy
Secretary:
Linda Schraven
Netherlands
Treasurer:
Gabi Niehaus
Germany
Board Counsellors
Beata Garay-Toth
Hungary
Ann Tyrrell Kennedy
Ireland
Kim Fligelstone
United Kingdom
Despo Charalambous Demetriou
Cyprus
Media Manager
Annelise Rønnow
Denmark
World Scleroderma Day Manager 2020
Helena Gaspar
Portugal
about FESCA
FESCA, Federation of European Scleroderma Associations aisbl, acts at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. As an umbrella group, FESCA supports its member organisations, while the support of individual sufferers of scleroderma remains the sole remit of national organisations.
FESCA’s objectives include encouraging the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care.