About FESCA:
The Board

The Board of FESCA consists of four officers, who undertakes the general administration of the Federation. The board members are elected by the Council to serve a period of 3 years.

Board Officers

President:
Sue Farrington
UK

Vice-President:
Ilaria Galetti
Italy

Secretary:
Linda Schraven
Netherlands

Treasurer:
Gabi Niehaus
Germany

 

Board Counsellors

Beata Garay-Toth
Hungary

Ann Tyrrell Kennedy
Ireland

Joep Welling
Netherlands

Kim Fligelstone
United Kingdom

Despo Charalambous Demetriou
Cyprus

Media Manager
Annelise Rønnow
Denmark

World Scleroderma Day Manager 2020
Helena Gaspar
Portugal

about FESCA

FESCA - a umbrella organisationFESCA, Federation of European Scleroderma Associations aisbl, acts at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. As an umbrella group, FESCA supports its member organisations, while the support of individual sufferers of scleroderma remains the sole remit of national organisations.

FESCA’s objectives include encouraging the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care.

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