FESCA, Federation of European Scleroderma Associations aisbl, is an umbrella group working at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. Currently, we are 23 member organisations from 18 different countries.
Are you a scleroderma patient?
As an umbrella group, FESCA supports its member organisations, while the support of individual sufferers of scleroderma remains the sole remit of national organisations. If you are a scleroderma patient looking for individual support, please contact your national organisation.
We are members of
European Patient’s Forum
- are the leading voice of patient organisations in Europe.
- lead patient advocacy in Europe providing a cross-disease perspective from a wide patient community to the policy-making process on issues which have a direct impact on patients’ lives.
Website: European Patients’ Forum
What is Scleroderma?
Scleroderma is a chronic disease characterized by excessive deposits of collagen in the skin or other organs. The localized type of the disease, while disabling, tends not to be fatal.
Diffuse scleroderma or systemic sclerosis, the generalized type of the disease, can be fatal as a result of heart, kidney, lung or intestinal damage.