Great achievement in Sweden
For the first time the Award “Patients Advocate of The Year” was presented in Stockholm, Sweden by the organisation Fokus Patient.
Among several very large patient organisations, such as Asthma- and Allergy Association and Swedish Breast Cancer Association – our young and comparatively very small organisation was awarded a very honorable second place! We are so proud!
In the motivation says that Riksföreningen för systemisk skleros [Swedish Scleroderma Patient Organisation] through hard work have been creating contacts with both authorities and politicians which has resulted in changes in the care of patient with scleroderma.
Well, we are not at all satisfied yet and will continue to fight!
Monica Holmner,
Riksföreningen för systemisk skleros
news & events
Public access to medical records – why is progress so slow?
BMJ presents a series of webinars on the topic medical records.
Kids get scleroderma, too!
A Virtual Conference for Parents and Guardians of Children Who Have Scleroderma, 23th October 2021.
Opinion article: The patient’s journey to a diagnosis
Annelise, a Danish scleroderma patient for many years talks about the patient’s journey towards a diagnosis.