Hand in Hand for a better future
June 29 is World Scleroderma Day – join us in Hand in Hand for a better future
Hand in Hand for a better future
Scleroderma is an autoimmune disease that causes severe disability and can be life threatening. It is characterized by hardening of the skin and in severe cases also affects internal organs. 2.5 million individuals world wide are diagnosed with scleroderma for which there is no cure. We call for explicit plans by governments and health policy makers at National and European level to improve the livelihood of people with scleroderma.
Join us – go HAND IN HAND
We invite you to take a picture Hand in Hand with your camera on your mobile or tablet and share it directly with your network. You may be a patient, a family member, carer or friend.
Don’t forget to use the some of the hashtags below to see your picture appear on our social media wall at www.worldsclerodermaday.org.
news & events
2022 highlights
Watch our highlights video showing some of our great achievements in 2022.
Are you living with diffuse scleroderma?
Are you living with diffuse scleroderma?
Would you like to be involved in a clinical study testing a new investigational drug for use in Diffuse Scleroderma?
If so, you may be eligible to take part in the DECODE Scleroderma Study
This is Living!
FESCA is proud to be a partner of a the new This is Living campaign launched last month by Boehringer Ingelheim.