Hand in Hand for a better future
June 29 is World Scleroderma Day – join us in Hand in Hand for a better future
Hand in Hand for a better future
Scleroderma is an autoimmune disease that causes severe disability and can be life threatening. It is characterized by hardening of the skin and in severe cases also affects internal organs. 2.5 million individuals world wide are diagnosed with scleroderma for which there is no cure. We call for explicit plans by governments and health policy makers at National and European level to improve the livelihood of people with scleroderma.
Join us – go HAND IN HAND
We invite you to take a picture Hand in Hand with your camera on your mobile or tablet and share it directly with your network. You may be a patient, a family member, carer or friend.
Don’t forget to use the some of the hashtags below to see your picture appear on our social media wall at www.worldsclerodermaday.org.
news & events
Opinion article: The patient’s journey to a diagnosis
Annelise, a Danish scleroderma patient for many years talks about the patient’s journey towards a diagnosis.
Testimony: António Pereira, music teacher
Meet António Pereira who has lived with and fought against Scleroderma for 40 years.
Testimony: Tânia Vieira, mother
Meet Tânia Vieira who talks about the biggest passion many mothers can relate to.