Hand in Hand for a better future
June 29 is World Scleroderma Day – join us in Hand in Hand for a better future
Hand in Hand for a better future
Scleroderma is an autoimmune disease that causes severe disability and can be life threatening. It is characterized by hardening of the skin and in severe cases also affects internal organs. 2.5 million individuals world wide are diagnosed with scleroderma for which there is no cure. We call for explicit plans by governments and health policy makers at National and European level to improve the livelihood of people with scleroderma.
Join us – go HAND IN HAND
We invite you to take a picture Hand in Hand with your camera on your mobile or tablet and share it directly with your network. You may be a patient, a family member, carer or friend.
Don’t forget to use the some of the hashtags below to see your picture appear on our social media wall at www.worldsclerodermaday.org.
news & events
FESCA 2019 Newsletter
We are happy to share with you the FESCA 2019 Newsletter. Read some inspiring stories from our members, and how they celebrated World Scleroderma Day 2019.
6th World Scleroderma Patient Congress
FESCA is delighted to announce that the next World Scleroderma Patient Congress, which takes place in Prague from March 5-7, 2020, will be live-streamed.
Help us to keep smiling
We invite you from all over the world to post a picture/video with smiles on social medias like twitter, facebook, instagram etc with the hashtag #ScleroSmile