Joining forces in spreading awareness
The Scleroderma Framed foundation, Stichting Scleroderma Framed, is a Dutch scleroderma foundation that is represented by an enthusiastic group of over twenty volunteers, who joined forces to raise awareness of scleroderma among the public in a positive and artistic way. This is done by taking portrait photos of people with scleroderma and exhibiting these photographs – they hope to reach a wider audience.
For more than 10 years the foundation have taken portrait photos, mainly of Dutch scleroderma patients, but 2 years ago, when EULAR was taken place in Amsterdam, the foundation reached out to those from FESCA going to Amsterdam if they had interest in participating in the project by having their pictures taken.
It was an honor to say yes!
Here, 2 years later, the corona virus has made it impossible for Scleroderma Framed Foundation to travel with the exhibition with the lovely portraits of many scleroderma patients in order to raise awareness.
Their solution is to travel themselves round the Netherlands, showing the lovely countrysides and put the portraits on display in the landscape – and make a video out of it.
We are happy to know, that they did a “FESCA version” in the beautiful surroundings of Hunebedden. Read more about the spectacular monuments in Hunebedden here.
Find more roadtrip videos by Scleroderma Framed here.
news & events
Annelise, a Danish scleroderma patient for many years talks about the patient’s journey towards a diagnosis.
Meet António Pereira who has lived with and fought against Scleroderma for 40 years.
Meet Tânia Vieira who talks about the biggest passion many mothers can relate to.