June 29 is World Scleroderma Day
TURNING TOWARDS THE SUN
Join us in turning towards the sun
like the sunflower does,
to celebrate World Scleroderma Day.
Download our poster for World Scleroderma Day 2014: . SSC Day poster_Klee Blumen_2014
Scleroderma is a rare disease of the immune system, blood vessels, and connective tissue. It is characterised by fibrosis of the skin and internal organs, and damage to the vascular system. The first symptom is generally Raynaud’s, a condition in which the fingers and toes turn white and numb in cold weather. Early diagnosis and treatment is critical to prevent the worst complications. The Federation of European Scleroderma Associations (FESCA) believes that people with scleroderma should have equal access to treatments and care.
The great Swiss artist Paul Klee died in 1940 of scleroderma, which strongly influenced his personal development and creative art.
Today many more optimistic developments exist for recovery.
To find events celebrating World Scleroderma Day, please contact your local patient association.
Link to members of FESCA can be found on our member page.
news & events
Are you living with diffuse scleroderma?
Would you like to be involved in a clinical study testing a new investigational drug for use in Diffuse Scleroderma?
If so, you may be eligible to take part in the DECODE Scleroderma Study
FESCA is proud to be a partner of a the new This is Living campaign launched last month by Boehringer Ingelheim.
We are happy to share with you our latest newsletter. Read about World Scleroderma Day 2021, projects, our next world congress and more.