News & Events
Our News & Event section presents the most recent and up-to-date information on FESCA’s work, involvement in research projects as well as upcoming and past events. Remember to come back here regularly to read the latest information on scleroderma and systemic sclerosis!
Visit our News section to read all the latest news from the Federation of European Scleroderma Associations:
Annelise, a Danish scleroderma patient for many years talks about the patient’s journey towards a diagnosis.
our main events
World Scleroderma Day
FESCA established European Scleroderma Day immediately upon its foundation and we consider the event a crucial part of our mission to increase awareness. FESCA aisbl. acts as a central force funding the national campaigns for what is now World Scleroderma Day on June 29 reimbursing the campaign costs of the 18 nations to an equal extent, and increasing awareness exponentially.
Systemic Sclerosis World Congress
The biannual Systemic Sclerosis World Congress is of unique importance to patients and health professionals in sharing information, spreading awareness, and developing networks. Congress workshops put patients and doctors into direct one-to-one contact so that doctors unfamiliar with the progression of the rare progressive scleroderma disease can experience the breadth of its impact on a large number of people.
FESCA, Federation of European Scleroderma Associations aisbl, encourages and undertake surveys, research projects and clinical trials related to the systemic sclerosis disease, and the publication of the results of any such research.
FESCA is always looking for better therapies. This is why we are partners with many different pharma companies. Pay our Scleroderma projects section a visit, and learn more about scleroderma research projects we're involved in.