FESCA & friends: Events
In creating greater awareness of scleroderma, as well as facilitating collaboration among national associations, and seeking the active involvement of politicians and pharmaceutical companies, events play a big part in FESCA’s work.
Scleroderma is a rare disease, and effective support, advocacy, and research requires embracing a wide consortium of patients. As an EU organisation in search of equitable access to treatments for patients across Europe, FESCA works to unify and promote the goals of its 23 organisations in 18 countries.
World Scleroderma Day
FESCA established European Scleroderma Day immediately upon its foundation and we consider the event a crucial part of our mission to increase awareness. FESCA aisbl. acts as a central force funding the national campaigns for what is now World Scleroderma Day on June 29 reimbursing the campaign costs of the 18 nations to an equal extent, and increasing awareness exponentially.
Systemic Sclerosis World Congress
The biannual Systemic Sclerosis World Congress is of unique importance to patients and health professionals in sharing information, spreading awareness, and developing networks. Congress workshops put patients and doctors into direct one-to-one contact so that doctors unfamiliar with the progression of the rare progressive scleroderma disease can experience the breadth of its impact on a large number of people. FESCA runs the congress Patient Program consisting of interactive sessions of lectures and discussions between doctors and medical staff and patients.
Scleroderma research
FESCA, Federation of European Scleroderma Associations aisbl, encourages and undertake surveys, research projects and clinical trials related to the systemic sclerosis disease, and the publication of the results of any such research.
FESCA is always looking for better therapies. This is why we are partners with many different pharma companies. Pay our Scleroderma projects section a visit, and learn more about scleroderma research projects we're involved in.