Conferences are important in almost all aspects of FESCA’s work. It is a lonely business, having a disease that nobody has heard of, but conferences gives us the opportunity to meet other scleroderma sufferers, to spread awareness of the disease – also in the medical and pharmaceutical industry – and to exchange knowledge and information. For FESCA, conferences also play a big role in terms of encouraging the active involvement of politicians and pharmaceutical companies.
FESCA is delighted to announce that the next World Scleroderma Patient Congress, which takes place in Prague from March 5-7, 2020, will be live-streamed.
The congress was an opportunity for doctors, healthcare professionals and patients to gather, share and present new medical findings, research and results.
The sessions in the auditorium were recorded, and we are happy to share those with you.
With the help of FESCA and other contributing centers the DeSScipher project had become the largest prospective observational research project ever on systemic sclerosis!
Watch the Opening session on 7 November 9 – 11.20am CET.
On October 18th 2014, the “A.P.S.B. Association des patients sclerodermiques de Belgique” organise the 6 th FRANCO-BELGE of scleroderma on 2014, October 18th in “La Halle aux Draps” Tournai Belgium.
Pope Francis lays hands in blessing on FESCA Scleroderma Patients at audience in Rome.
FESCA, Federation of European Scleroderma Associations aisbl, encourages and undertake surveys, research projects and clinical trials related to the systemic sclerosis disease, and the publication of the results of any such research.
FESCA is always looking for better therapies. This is why we are partners with many different pharma companies. Pay our Scleroderma projects section a visit, and learn more about scleroderma research projects we're involved in.