EUSTAR – The European Scleroderma Trials and Research group – aims to foster the awareness, understanding and research on systemic sclerosis and its management throughout Europe and the rest of the world.
EUSTAR is an international scleroderma research network acting under the umbrella of the World Scleroderma Foundation. The aim is to coordinate and focus research activities, in order to improve treatment, quality of life and prognosis of patients with scleroderma.
The main research tool is a multicenter online database that allows following prospectively more than 15,000 patients with scleroderma in more than 200 International centres. Each patient’s annually scheduled visit for medical purposes is recorded providing longitudinal observational data.
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FESCA, Federation of European Scleroderma Associations aisbl, encourages and undertake surveys, research projects and clinical trials related to the systemic sclerosis disease, and the publication of the results of any such research.
FESCA is always looking for better therapies. This is why we are partners with many different pharma companies. Pay our Scleroderma projects section a visit, and learn more about scleroderma research projects we're involved in.