News:
Scleroderma Day
news & eventsScleroderma Day was created to tell people, including the medical community, what it means to have scleroderma. June 29th is a day to recognize the bravery of those who live with this disabling disease, and to demand equal treatment and equal care for people with scleroderma across Europe. We chose June 29th for Scleroderma Day in honour of the gifted Swiss artist Paul Klee. He made painting his life’s work, but it was strongly influenced by his illness, systemic scleroderma.
Paul Klee died June 29, 1940.
Scleroderma Day news:
Opinion article: The patient’s journey to a diagnosis
Annelise, a Danish scleroderma patient for many years talks about the patient’s journey towards a diagnosis.
Testimony: António Pereira, music teacher
Meet António Pereira who has lived with and fought against Scleroderma for 40 years.
Testimony: Tânia Vieira, mother
Meet Tânia Vieira who talks about the biggest passion many mothers can relate to.
Opinion article: The importance of Patient Associations
Elsa Mateus – President of the Portuguese League Against Reumatic Diseases talks about the importance of patient associations.
Testimony: Rute Correira, skydiving
Meet Rute from our World Scleroderma Day poster, who have decided that Scleroderma will never overcome her.
Patients with Scleroderma are much more than their disease
FESCA, the Federation of European Scleroderma Associations, is ready to celebrate another World Scleroderma
Day with a campaign to raise awareness of Scleroderma, also known as Systemic Sclerosis.
Scleroderma, the physical and emotional impact
Article by doctor Susana Oliveira, graduated Hospital Assistant and Systemic Sclerosis Consulting Coordinator at the Professor Doutor Fernando Fonseca Hospital
Schutz vor Covid-19-jetzt nicht nachlassen
Artikel von Maria José Guimarães, Pulmonologin, Koordinatorin des pneumologischen Dienstes des Krankenhauses von Luz-Guimarães.
Do not make it easy!
Opinion article by Dr. Maria José Guimarães, Pulmonologist, Coordinator of the Pneumology Service of the Luz-Guimarães Hospital
Our smile is vulnerable!
Protect yourself to protect us! This is the 2020 World Scleroderma Day campaign by FESCA
PRESS RELEASE : Patients with Scleroderma more vulnerable to COVID-19
The COVID-19 pandemic forced us to redefine our campaign message and to highlight the importance of protecting patients with scleroderma.
Help us to keep smiling
We invite you from all over the world to post a picture/video with smiles on social medias like twitter, facebook, instagram etc with the hashtag #ScleroSmile
World Scleroderma Day 2019
PRESS RELEASE: European associations align in the battle against systemic sclerosis for World Scleroderma Day 2019
New video for World Scleroderma Day 2018
We are very happy to show you the new video for World Scleroderma Day 2018!
World Scleroderma Day 2018
You really liked our campaign from last year: Scleroderma will not take my smile. So why not do the campaign another year, but still a bit different than last year.
Scleroderma will not take my smile
World Scleroderma Day 2017: We invite you from all over the world to post a picture/video with smiles on social medias like twitter, facebook, instagram etc with the hashtag #ScleroSmile
Hand in Hand for a better future
June 29 is World Scleroderma Day – join us in Hand in Hand for a better future.
FESCA holds event in EU Parliament
PRESS RELEASE: To celebrate World Scleroderma Day 2015, FESCA held the European Parliamentary event “Unveiling Scleroderma: Hidden Truth” on June 30 in Brussels.
Interview on World Scleroderma Day 2015
Watch a specially recorded message for World Scleroderma Day 2015 by Ms. Ramona Kanters.
Unveiling Scleroderma
This World Scleroderma Day 2015 we will be “unveiling Scleroderma”.
June 29 is World Scleroderma Day
Join us in turning towards the sun like the sunflower does, to celebrate World Scleroderma Day 2014.
Scleroderma Day events in France
Please find attached this post the full programme for Scleroderma Day 2014 in France.
Scleroderma research
FESCA, Federation of European Scleroderma Associations aisbl, encourages and undertake surveys, research projects and clinical trials related to the systemic sclerosis disease, and the publication of the results of any such research.
FESCA is always looking for better therapies. This is why we are partners with many different pharma companies. Pay our Scleroderma projects section a visit, and learn more about scleroderma research projects we're involved in.