News:
Survey
news & eventsSurveys help gain knowledge from those who know: The scleroderma patients themselves. FESCA often facilitates and help disseminate surveys on behalf of our pharmaceutical company partners, universities or member organisations.
As a scleroderma patient, we encourage you to participate in surveys presented by FESCA and friends, as they help advance research on scleroderma, improve care and treatment options as well as quality of life in scleroderma
Survey news:
Surveys on patients’ experiences
Participate in surveys to help the researchers, doctors, patient organizations and more to learn more about the patients with RMDs and COVID-19
2 surveys on quality of care and cross-border healthcare
Following several years’ of involvement in EU-level discussions on healthcare policy and patient safety, EPF is now conducting a survey to explore the perceptions of patients about what matters most about “quality” of care.
Woman and pregnancy study
University of Nicosia in Cyprus, where medical students are in the medical program of St George’s from the University of London, is conducting a study to analyse the most common and high-risk pregnancy complications experienced by women with rheumatic diseases.
Scleroderma Support Group Survey
Do you have scleroderma? Are you interested in helping advance research on scleroderma support groups? If so, please lend a hand by completing this short 10-15 minute survey!
Scleroderma Healthcare Report
Sclerodermie Advies & Voorlichting (Scleroderma Recommendation & Information – SAV) initiated the Scleroderma Healthcare study in 2013.
PROMIS – Quality of life survey
Doctors at the University of Michigan Health System, are conducting a piece of research called PROMIS (Patient Reported Outcomes Measurement Information System) in rheumatology.
Survey on personal reaction on Scleroderma
EUSTAR and FESCA have developed a survey, in several languages, about the personal reactions of those with SSc to their disease.
Participate in the EUSHNeT survey!
In an effort to improve non-pharmacological care for scleroderma patients, the EUSHNet project is attempting to evaluate the existing situation in health professional practice in scleroderma across European countries.
Scleroderma research
FESCA, Federation of European Scleroderma Associations aisbl, encourages and undertake surveys, research projects and clinical trials related to the systemic sclerosis disease, and the publication of the results of any such research.
FESCA is always looking for better therapies. This is why we are partners with many different pharma companies. Pay our Scleroderma projects section a visit, and learn more about scleroderma research projects we're involved in.