FESCA Members:
FESCA, Federation of European Scleroderma Associations aisbl, is an umbrella group working at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. Currently, we are 23 member organisations from 18 different countries.
Are you a scleroderma patient?
As an umbrella group, FESCA supports its member organisations, while the support of individual sufferers of scleroderma remains the sole remit of national organisations. If you are a scleroderma patient looking for individual support, please contact your national organisation.
AUSTRIA
BELGIUM (Dutch speaking part)
CIB-Liga vzw
Lindenlaan 15
B-3680 Maaseik
Tel: +32 89 73 41
secretariaat@cibliga.be
www.cibliga.be
BELGIUM (French speaking part)
APSB – Association des Patients Sclérodermiques de Belgique
Rue Du Pont à Rieu 13 i
7500 Saint Maur
Tel: 0032 485 178297
sclerodermie@clair.be
www.sclerodermie.be
GREECE
ELEANA-Hellenic League Against Rheumatism
Tel: + 30 210 8237302
info@arthritis.org.gr
www.arthritis.org.gr
CROATIA
HUOS – Hrvatska udruga oboljelih od sklerodermije
Brozova 26
10000 Zagreb
Tel: +3851 36 68 098
Fax: +3851 36 48 143
jadrankabrozd@jadrankabrozd.hr
www.huos.hr
CYPRUS
Αντιρευματικός Σύνδεσμος Κύπρου
Onisilou 16, app, Aglantzia
2121 Nicosia
Cyprus
Tel: +357 22 428285
Fax: +3851 36 48 143
cyplar@cytanet.com.cy
www.rheumatism.org.cy
CZECH REPUBLIC
Revma liga
Revmatologický ústav
Na Slupi 450/4, 128 50 Praha 2
Czech Republic
Tel:+420 731 644 350
michaela.linkova@revmaliga.cz
www.revmaliga.cz
DENMARK
FINLAND
Suomen Sklerodermayhdistys Ry
Matsäkedonkatu 33 as 2
24100 Salo
Tel.: +35 8407383563
E-mail:puheenjohtaja@sklero.org
http://244846.edicypages.com
FRANCE
Association des Sclérodermiques de France
Chez Christian Damon
136 rue de Mouises
45130 BACCON
Tel.: +33-(0)820 620 615
info@association-sclerodermie.fr
www.association-sclerodermie.fr
GERMANY
Sklerodermie Selbsthilfe e.V.
Am Wollhaus 2
D–74 072 Heilbronn
Tel.: +49-7131- 390 24 25
Fax.: +49-7131- 390 24 26
sklerodermie@t-online.de
www.sklerodermie-sh.de
GERMANY
Scleroderma Liga e.V.
Michaela Sachsenhauser
Ötzstr. 24
D-85457 Wörth
Telefon: +49-8121-225 9705
E-Mail: verein@scleroliga.de
HUNGARY
Országos Scleroderma Közhasznú Egyesület
7632 Pécs
Aidinger J. u. 40. VIII. em./31.
Tel.: +36-306377491
szkleroderma@gmail.com
www.szkleroderma.hu
ISRAEL
ITALY
AILS – Associazione Italiana Lotta alla Sclerodermia onlus
c/o Azienda Ospedaliera Gaetano Pini
Via G. Pini, 9
20122 Milano
Tel.: +39-0258296675 /74
Cell. +39-3387193491 – +39-3386694061
ails@tiscali.it
www.ails.it
ITALY
APMAR – Associazione Nazionale Persone con Malattie Reumatologiche e Rare
Via Miglietta, n. 5
73100 Lecce (LE)
c/o ASL LECCE (Ex Opis)
Tel.: Fax 0832 520165
info@apmarr.it
www.apmarr.it
ITALY
ASSMAF – Associazione per lo studio della Sclerosi Sistemica e delle Malattie Fibrosanti
Viale G. Pieraccini, 18
50139 Firenze
Tel.: +39-055 7947512 – +39-348 6061976 – +39 334 1176566
Fax.: +39-055 4376437
associazione@assmaf-onlus.org
www.assmaf-onlus.org
ITALY
GILS – Gruppo Italiano per la Lotta alla Sclerodermia
Padiglione Litta, Via Francesco Sforza 35
c/o IRCCS Ospedale Maggiore Policlinico Mangiagalli
20122 Milan MI
Tel.: +39-02-55199506
Fax.: +39-02-54100351
gils@sclerodermia.net
www.sclerodermia.net
NETHERLANDS
Nationale vereniging voor LUPUS, APS, Sclerodermie en MCTD
Postbus 5056
3502 JB Utrecht
Tel.: +31-88-0157000
info@nvle.org
www.nvle.org
www.wereldsclerodermiedag.nl
NORWAY
Norsk Revmatikerforbund
P.O.Box 2653 Solli
N-0203 Oslo
Tel.: +47 22 54 76 00
post@revmatiker.no
www.revmatiker.no
PORTUGAL
ADPE – Associação Portuguesa de Doentes com Esclerodermia
Quinta da Oliveira, Bloco A, R/C Dto
4950-534 Monção
Tel.: +351 961 289 627
associacao.apde@gmail.com
www.esclerodermia.pt
PORTUGAL
Liga Portuguesa contra as Doenças Reumáticas
Rua Quinta do Loureiro, 13 – Loja 2
1350-410 Lisboa
Tel.: +351 21 364 87 76
Tel.: +351 92 560 99 37
lpcdr@lpcdr.org.pt
www.lpcdr.org.pt
ROMANIA
Asociatia Pacientilor cu Sclerodermie din Romania
Bucharest
Tel.: +351 21 364 87 76
Tel.: +351 92 560 99 37
contact@sclerodermie.ro
www.sclerodermie.ro
SPAIN
AEE – Asociación Española de Esclerodermia
C/ Rosa Chacel, 1
28230 Las Rozas – Madrid
Tel.: 911 649 908
Tel.: 674 406 688
info@esclerodermia.com
www.esclerodermia.com
SWEDEN
The Swedish Rheumatism Association
Reumatikerförbundet
Box 90337
120 25 Stockholm
Tel.: +46 08 505 805 39
E-mails: systemiskskleros@gmail.com; info@reumatiker.se
www.reumatikerforbundet.org
SWITZERLAND
Sclerodermie.ch
3000 Bern
Tel.: +41 77 503 51 42 (French)
Tel.: +41 77 502 18 68 (German)
Tel.: +41 77 501 67 59 (Italian)
info@sclerodermie.ch
www.sclerodermie.ch
UNITED KINGDOM
Scleroderma and Raynaud’s UK
Bride House
18-20 Bride Lane
EC4Y 8EE
London
Tel. within UK: 020 3893 5998
Tel. abroad UK: +44 20 3839 5998
Tel.: +44 20 7000 1925
info@sruk.co.uk
www.sruk.co.uk
What is Scleroderma?
Scleroderma is a chronic disease characterized by excessive deposits of collagen in the skin or other organs. The localized type of the disease, while disabling, tends not to be fatal.
Diffuse scleroderma or systemic sclerosis, the generalized type of the disease, can be fatal as a result of heart, kidney, lung or intestinal damage.