FESCA Members:

FESCA, Federation of European Scleroderma Associations aisbl, is an umbrella group working at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. Currently, we are 23 member organisations from 18 different countries.

Are you a scleroderma patient?

As an umbrella group, FESCA supports its member organisations, while the support of individual sufferers of scleroderma remains the sole remit of national organisations. If you are a scleroderma patient looking for individual support, please contact your national organisation.

BelgiumBELGIUM (Dutch speaking part)

CIB-Liga vzw
Lindenlaan 15
B-3680 Maaseik

Tel: +32 89 73 41
secretariaat@cibliga.be
www.cibliga.be

BelgiumBELGIUM (French speaking part)

APSB – Association des Patients Sclérodermiques de Belgique
Le Versailles
Avenue des Etats Unis, 20/32
7500 Tournai

Tel: +32-69-777 019
sclerodermie@clair.be
www.sclerodermie.be

CroatiaCROATIA

HUOS – Hrvatska udruga oboljelih od sklerodermije
Frana Folnegovića 1c
10000 Zagreb

Tel: +3851 36 68 098
Fax: +3851 36 48 143
jadrankabrozd@jadrankabrozd.hr
www.huos.hr

CyprusCYPRUS

Αντιρευματικός Σύνδεσμος Κύπρου
Onisilou 16, app, Aglantzia
2121 Nicosia
Cyprus

Tel: +357 22 428285
Fax: +3851 36 48 143
cyplar@cytanet.com.cy
www.rheumatism.org.cy

DenmarkDENMARK

Sklerodermiforeningen
Kaffevej 45, 1.th.
2610 Rødovre

info@sklerodermi.dk
www.sklerodermi.dk

FinlandFINLAND

Suomen Sklerodermayhdistys Ry
Salmenranta 2 c c 9
24100 Salo

Tel.: +35 8407383563
marjo.makela@ebaana.net
http://244846.edicypages.com

FranceFRANCE

Association des Sclérodermiques de France
2 Boulevard Lafayette
89000 Auxerre

Tel.: +33-(0)820 620 615
info@association-sclerodermie.fr
www.association-sclerodermie.fr

GermanyGERMANY

Sklerodermie Selbsthilfe e.V.
Am Wollhaus 2
D–74 072 Heilbronn

Tel.: +49-7131- 390 24 25
Fax.: +49-7131- 390 24 26
sklerodermie@t-online.de
www.sklerodermie-sh.de

GermanyGERMANY

Scleroderma Liga e.V.
Kelterstraße 23,
76227 Karlsruhe

Tel.: +49 7274 04844
www.scleroliga.de

HungaryHUNGARY

Országos Scleroderma Közhasznú Egyesület
7632 Pécs
Aidinger J. u. 40. VIII. em./31.

Tel.: +36-306377491
scleroderma@freemail.hu
www.szkleroderma.hu

IrelandIRELAND

Raynaud’s & Scleroderma Ireland
Paradigm House, Dundrum Office Park, Main St, Dundrum
Dublin 14

Tel: 0818 363 999
info@irishraynauds.com
www.irishraynauds.com

ItalyITALY

AILS – Associazione Italiana Lotta alla Sclerodermia onlus
c/o Azienda Ospedaliera Gaetano Pini
Via G. Pini, 9
20122 Milano

Tel.: +39-0258296675 /74
Cell. +39-3387193491 – +39-3386694061
ails@tiscali.it
www.ails.it

ItalyITALY

APMAR – Associazione Nazionale Persone con Malattie Reumatologiche e Rare
Via Miglietta, n. 5
73100 Lecce (LE)
c/o ASL LECCE (Ex Opis)

Tel.: Fax 0832 520165
info@apmar.it
www.apmar.it

ItalyITALY

ASSMAF – Associazione per lo studio della Sclerosi Sistemica e delle Malattie Fibrosanti
Viale G. Pieraccini, 18
50139 Firenze

Tel.: +39-055 7947512 – +39-348 6061976 – +39 334 1176566
Fax.: +39-055 4376437
associazione@assmaf-onlus.org
www.assmaf-onlus.org

ItalyITALY

GILS – Giornata Italiana per la Lotta alla Sclerodermia
Padiglione Litta, Via Francesco Sforza 35
c/o IRCCS Ospedale Maggiore Policlinico Mangiagalli
20122 Milan MI

Tel.: +39-02-55199506
Fax.: +39-02-54100351
gils@sclerodermia.net
www.sclerodermia.net

NetherlandsNETHERLANDS

Nationale vereniging voor LUPUS, APS, Sclerodermie en MCTD
Postbus 5056
3502 JB Utrecht

Tel.: +31-88-0157000
info@nvle.org
www.nvle.org
www.wereldsclerodermiedag.nl

NorwayNORWAY

Norsk Revmatikerforbund
P.O.Box 2653 Solli
N-0203 Oslo

Tel.: +47 22 54 76 00
post@revmatiker.no
www.revmatiker.no

PolandPOLAND

Pro Rheumate
ul Ziołowa 45-47
40-635 Katowice

Tel.: +48 32 3598290
bealew23@wp.pl
mw@sportmed.com.pl

PortugalPORTUGAL

ADPE – Associação Portuguesa de Doentes com Esclerodermia
Quinta da Oliveira, Bloco A, R/C Dto
4950-534 Monção

Tel.: +351 961 289 627
associacao.apde@gmail.com
www.esclerodermia.pt

PortugalPORTUGAL

Liga Portuguesa contra as Doenças Reumáticas
Rua Quinta do Loureiro, 13 – Loja 2
1350-410 Lisboa

Tel.: +351 21 364 87 76
Tel.: +351 92 560 99 37
lpcdr@lpcdr.org.pt
www.lpcdr.org.pt

RomaniaROMANIA

Asociatia Pacientilor cu Sclerodermie din Romania
Bucharest

Tel.: +351 21 364 87 76
Tel.: +351 92 560 99 37
contact@sclerodermie.ro
www.sclerodermie.ro

SpainSPAIN

AEE – Asociación Española de Esclerodermia
C/ Rosa Chacel, 1
28230 Las Rozas – Madrid

Tel.: 911 649 908
Tel.: 674 406 688
info@esclerodermia.com
www.esclerodermia.org

SwedenSWEDEN

Reumatikerförbundet
Box 6240
Hälsingegatan 43
102 34 Stockholm

Tel.: +46 08-505 805 39
info@reumatikerforbundet.org
systemiskskleros@gmail.com
www.reumatikerforbundet.org

SwitzerlandSWITZERLAND

Sclerodermie.ch
3000 Bern

Tel.: +41-24-472 32 64 (French)
Tel.: +41-77-406 09 58 (German)
Tel.: +41-62 777 22 34 (Italian)
info@sclerodermie.ch
www.sclerodermie.ch

United KingdomUNITED KINGDOM

Scleroderma and Raynaud’s UK
Bride House
18-20 Bride Lane
EC4Y 8EE
London

Tel. within UK: 020 3893 5998
Tel. abroad UK: +44 20 3839 5998
Tel.: +44 20 7000 1925
info@sruk.co.uk
www.sruk.co.uk

What is Scleroderma?

Scleroderma researchScleroderma is a chronic disease characterized by excessive deposits of collagen in the skin or other organs. The localized type of the disease, while disabling, tends not to be fatal.

Diffuse scleroderma or systemic sclerosis, the generalized type of the disease, can be fatal as a result of heart, kidney, lung or intestinal damage.

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