PROMIS – Quality of life survey
Vivek Nagaraja, MD and Dinesh Khanna, MD, MSc at the University of Michigan Health System, are conducting a piece of research called PROMIS (Patient Reported Outcomes Measurement Information System) in rheumatology.
The research involves an online survey catered to patients with various rheumatologic conditions.
Interested patients are highly encouraged to take this survey as it provides important information about the burden of their rheumatologic condition on different aspects of life.This survey is completely voluntary and confidential.
Click here to go to the survey: www.bitly.com/UMpromis
For further instruction, please read this instruction guide.
news & events
Are you living with diffuse scleroderma?
Would you like to be involved in a clinical study testing a new investigational drug for use in Diffuse Scleroderma?
If so, you may be eligible to take part in the DECODE Scleroderma Study
FESCA is proud to be a partner of a the new This is Living campaign launched last month by Boehringer Ingelheim.
We are happy to share with you our latest newsletter. Read about World Scleroderma Day 2021, projects, our next world congress and more.