PROMIS – Quality of life survey
Vivek Nagaraja, MD and Dinesh Khanna, MD, MSc at the University of Michigan Health System, are conducting a piece of research called PROMIS (Patient Reported Outcomes Measurement Information System) in rheumatology.
The research involves an online survey catered to patients with various rheumatologic conditions.
Interested patients are highly encouraged to take this survey as it provides important information about the burden of their rheumatologic condition on different aspects of life.This survey is completely voluntary and confidential.
Click here to go to the survey: www.bitly.com/UMpromis
For further instruction, please read this instruction guide.
news & events
We are happy to share with you the FESCA 2019 Newsletter. Read some inspiring stories from our members, and how they celebrated World Scleroderma Day 2019.
FESCA is delighted to announce that the next World Scleroderma Patient Congress, which takes place in Prague from March 5-7, 2020, will be live-streamed.
We invite you from all over the world to post a picture/video with smiles on social medias like twitter, facebook, instagram etc with the hashtag #ScleroSmile