Rare Disease Day 2014
Rare Disease Day is held the last day of February each year and is the occasion to raise awareness for rare diseases. The day is coordinated by EURORDIS.
On and around this day hundreds of patient organisations from more than 70 countries and regions worldwide are planning awareness-raising activities around the slogan “Join Together for Better Care”.
Please go to Rare Disease Day website to learn about the events taking place round the world. Lets join together for better care.
news & events
We are happy to share with you the FESCA 2019 Newsletter. Read some inspiring stories from our members, and how they celebrated World Scleroderma Day 2019.
FESCA is delighted to announce that the next World Scleroderma Patient Congress, which takes place in Prague from March 5-7, 2020, will be live-streamed.
We invite you from all over the world to post a picture/video with smiles on social medias like twitter, facebook, instagram etc with the hashtag #ScleroSmile