Scleroderma Healthcare Report
Sclerodermie Advies & Voorlichting (Scleroderma Recommendation & Information – SAV) initiated the Scleroderma Healthcare study in 2013.
The principal reason was that the owner of SAV, Ramona Kanters, suffers from this disease and has made it her life objective to improve healthcare and quality of life in scleroderma. In this setting up to 200 patients were interviewed and the team administered a questionnaire.
The questionnaires were analyzed for 65 of these patients, 59 female and 6 male.
Read the whole report by Ramona Kanters and Mieke Rovers.
PDF: Scleroderma Healthcare Report
For more information, please visit the Sclerodermie Advies & Voorlichting website.
news & events
EULAR COVID-19 and COVAX Database
A tool for rheumatologists and other healthcare professionals for RMD patients.
Protect your skin
Skin care is very important when you have systemic sclerosis.
Joining forces in spreading awareness
Come with us on a roadtrip along with Scleroderma Framed in order to spread awareness of Scleroderma.