Scleroderma Healthcare Report
Sclerodermie Advies & Voorlichting (Scleroderma Recommendation & Information – SAV) initiated the Scleroderma Healthcare study in 2013.
The principal reason was that the owner of SAV, Ramona Kanters, suffers from this disease and has made it her life objective to improve healthcare and quality of life in scleroderma. In this setting up to 200 patients were interviewed and the team administered a questionnaire.
The questionnaires were analyzed for 65 of these patients, 59 female and 6 male.
Read the whole report by Ramona Kanters and Mieke Rovers.
PDF: Scleroderma Healthcare Report
For more information, please visit the Sclerodermie Advies & Voorlichting website.
news & events
Buy your medicine via authorized channels
The European Medicine Agency is urging the general public NOT to buy medicines from unauthorized websites.
COVID-19 – advice for you
We know these are worrying times. We have gathered information to answer your questions and concerns.
Scleroderma & COVID-19: A Conversation with the Experts
Join the webinar on Scleroderma and COVID-19 this Saturday, March 21.