Scleroderma Healthcare Report
Sclerodermie Advies & Voorlichting (Scleroderma Recommendation & Information – SAV) initiated the Scleroderma Healthcare study in 2013.
The principal reason was that the owner of SAV, Ramona Kanters, suffers from this disease and has made it her life objective to improve healthcare and quality of life in scleroderma. In this setting up to 200 patients were interviewed and the team administered a questionnaire.
The questionnaires were analyzed for 65 of these patients, 59 female and 6 male.
Read the whole report by Ramona Kanters and Mieke Rovers.
PDF: Scleroderma Healthcare Report
For more information, please visit the Sclerodermie Advies & Voorlichting website.
news & events
6th World Scleroderma Patient Congress
FESCA is delighted to announce that the next World Scleroderma Patient Congress, which takes place in Prague from March 5-7, 2020, will be live-streamed.
Help us to keep smiling
We invite you from all over the world to post a picture/video with smiles on social medias like twitter, facebook, instagram etc with the hashtag #ScleroSmile
World Scleroderma Day 2019
PRESS RELEASE: European associations align in the battle against systemic sclerosis for World Scleroderma Day 2019