Scleroderma Research:

FESCA encourages the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care.

in this section:

Scleroderma research →
About Scleroderma →
SPIN →
BURQOL-RD →
DeSScipher →
EUSHNet →
IMPRESS →
WSF →

Always looking for better therapies, we are partners with many different pharma companies and take an active part in research projects.

Currently, FESCA partners with:

Mitsubishi Tanabe Pharma is built on a foundation more than 300 years strong: a legacy of innovation to meet unmet medical needs and help people enjoy healthier, more comfortable lives. Our focus has always been on the future. Mitsubishi Tanabe Pharma’s mission is Creating Hope for All Facing Illness. We value your trust. We honor that trust through our commitment to delivering quality products, to conducting robust research and development, and to improving the health of Systemic Scleroderma patients worldwide.

World Scleroderma Day

Having a disease that nobody has heard of is a lonely business. When even the doctors cannot recognise it, or tell you what is going to happen, it is lonelier still. So World Scleroderma Day was created to tell people, including the medical community, what it means to have this disabling disease. June 29 is a day to recognise the bravery of those who live with scleroderma, and to demand equal treatment and equal care for people with scleroderma across Europe.

Every year, on June 29, we campaign for a world in which equal rights, treatments, and care are offered to people with scleroderma, and in which such rare diseases are not forgotten, but afforded the consideration and attention of other more common diseases.

Learn more about June 29th