If you would like to know more about scleroderma research, or scleroderma and systemic sclerosis in general, we have collected a number of interesting links, where you can find more relevant information on these subjects.
World Scleroderma Foundation
The World Scleroderma Foundation is a non-profit, non-governmental foundation promoting scleroderma research and supporting patients suffering from scleroderma.
The European League Against Rheumatism (EULAR) is the organisation which represents the people with arthritis/rheumatism, health professionals (HPR) and scientific societies of rheumatology of all the European nations.
The European Scleroderma Trials and Research group (EUSTAR) is an international scleroderma research network acting under the umbrella of the World Scleroderma Foundation. The aim is to coordinate and focus research activities, in order to improve treatment, quality of life and prognosis of patients with scleroderma.
International Scleroderma Network
The sclero.org web site is a digital outreach education and awareness service of the nonprofit International Scleroderma Network, available in 23 languages.
The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community in the USA.
The purpose of the association is to promote scleroderma awareness on a National basis, disseminate information about scleroderma, fund and coordinate scleroderma research on a National basis, and to advocate for improved and ongoing support for scleroderma patients.
Zentrum Paul Klee, Bern
Zentrum Paul Klee in Bern has the most significant collection of paintings, aquarelles and drawings world-wide and includes archive and biographical material from all the periods of Paul Klee’s work.
European Academy of Dermatology and Venereology (EADV) is the leading community to further the knowledge of health professionals and advocates in the field of dermatology and venereology.
World Scleroderma Day
Having a disease that nobody has heard of is a lonely business. When even the doctors cannot recognise it, or tell you what is going to happen, it is lonelier still. So World Scleroderma Day was created to tell people, including the medical community, what it means to have this disabling disease. June 29 is a day to recognise the bravery of those who live with scleroderma, and to demand equal treatment and equal care for people with scleroderma across Europe.
Every year, on June 29, we campaign for a world in which equal rights, treatments, and care are offered to people with scleroderma, and in which such rare diseases are not forgotten, but afforded the consideration and attention of other more common diseases.