Scleroderma Support Group Survey
Do you have scleroderma? Are you interested in helping advance research on scleroderma support groups? If so, please lend a hand by completing this short 10-15 minute survey!
Our team, which is comprised of international researchers; people with scleroderma; and leaders from the Federation of European Scleroderma Associations, the Scleroderma Foundation of the United States, and the Scleroderma Society of Canada are working
together to learn more about the experiences of scleroderma support group facilitators, scleroderma support group members, and people who choose not to attend scleroderma support groups.
Your anonymous answers to the survey questions will provide a greater understanding of the important training and support needs of group leaders, as well as the reasons why people with scleroderma either attend or do not attend support groups. The results from this survey will be used to increase the accessibility of scleroderma support groups and to structure these groups in a way that increases their ability to effectively meet the needs of members.
If you have a few minutes to spare and are able to help with this exciting research project, please click on the following link, which will take you directly to the survey:
If you have any additional questions or concerns about the survey, please contact any member of our research team listed below:
MS. STEPHANIE GUMUCHIAN
MSc. Psychiatry Student, McGill University
Telephone: (514) 340-8222 ext. 6813; Email: firstname.lastname@example.org
MS. VANESSA DELISLE
PhD. Counselling Psychology Student, McGill University
Telephone: (514) 340-8222 ext. 6812; Email: email@example.com
MS. MIA PEPIN
BSc. Psychology Student, Université de Montréal
Telephone: (514) 340-8222 ext. 8578; Email: firstname.lastname@example.org
news & events
We are happy to share with you the FESCA 2019 Newsletter. Read some inspiring stories from our members, and how they celebrated World Scleroderma Day 2019.
FESCA is delighted to announce that the next World Scleroderma Patient Congress, which takes place in Prague from March 5-7, 2020, will be live-streamed.
We invite you from all over the world to post a picture/video with smiles on social medias like twitter, facebook, instagram etc with the hashtag #ScleroSmile