increasing scleroderma awareness
Welcome! We are FESCA – Federation of European Scleroderma Associations aisbl; an umbrella group of scleroderma patient support-and-advocacy organisations working to increase awareness, and advocate for equitable treatments for people with scleroderma throughout Europe.
news & events
Protect yourself to protect us! This is the 2020 World Scleroderma Day campaign by FESCA
The COVID-19 pandemic forced us to redefine our campaign message and to highlight the importance of protecting patients with scleroderma.
The winner of this year is diagnosed with scleroderma. Read her essay here.
FESCA, Federation of European Scleroderma Associations aisbl, acts at a pan-European level to promote and achieve its objectives in alignment with the aims of the national groups it represents. As an umbrella group, FESCA supports its member organisations, while the support of individual sufferers of scleroderma remains the sole remit of national organisations.
FESCA’s objectives include encouraging the active involvement of politicians and pharmaceutical companies, working with doctors to secure earlier diagnosis and better treatments, and creating greater awareness of scleroderma so that those who suffer from it can access proper, equitable care.