World Scleroderma Day
June 29
What it means to have this
disabling disease
Learn more about June 29th
Rare diseases are not forgotten
Spread awareness and support
research
Always looking for
better therapies
New research has brought
important improvements.
We are partners with many
pharma companies.
We spread awareness
and support research.
How we help. **(This section can be dedicated for SSc info, and the picture on the right can be an interactive human body )Give a future full
Give a future full
of choices
Health
Education
Protection
Every person deserves a healthy start
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Treatment and Medication
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Improving the quality of life
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- A help to those who need it
We are FESCA
Federation of European Scleroderma Associations aisbl; an umbrella group of scleroderma patient support-and-advocacy organisations working to increase awareness, and advocate for equitable treatments for people with scleroderma throughout Europe.
Umbrella group
FESCA supports its member organisations
Are you a scleroderma patient?
As an umbrella group, FESCA supports its member organisations, while the support of individual sufferers of scleroderma remains the sole remit of national organisations. If you are a scleroderma patient looking for individual support, please contact your national organisation.
- About scleroderma
What is Scleroderma?
01
Rare autoimmune disease
It causes the body to produce too much collagen.
02
Symptoms
The very first symptoms can include Raynaud’s phenomenon, fatigue, breathing difficulties, and limited mobility.
03
It can lead to
hardening and tightening of skin and internal organs.
- | Tips on self management
Learn about living with Scleroderma
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Scleroderma is a chronic disease characterised by excessive deposits of collagen in the skin or other organs. The localized type of the disease, while disabling, tends not to be fatal. Diffuse scleroderma or systemic sclerosis, the generalized type of the disease, can be fatal as a result of heart, kidney, lung or intestinal damage.
Not all patients with scleroderma (systemic sclerosis) will suffer serious complications – no two patients are truly alike – but in its more aggressive form it is the most fatal of all the rheumatologic disorders.
What scleroderma is not?
Scleroderma is not contagious, infectious, cancerous or malignant.
- | Make a difference today
Donations that make a difference by truly helping
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Make a donation
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Donation Info
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Possibility of help
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How we work
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donate to support
Featured Campaigns
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"Stand tall and face the sun.”
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Committed to Transparency
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Our members
23
Member organisations in Europe
18
Different countries
- | The organizational staff
Meet the Team
President
Sue Farrington
Vice President
Ilaria Galetti
Secretary
Linda Schraven
Coms manager
Annelise Roennow
Board member