Privacy Policy

FESCA•Privacy Policy

Privacy Policy

Last updated: 23rd April, 2025.
This Privacy Policy explains how the Federation of European Scleroderma Associations aisbl (“FESCA”, “we”, “us”, “our”) collects, uses and protects your personal data when you visit our website or interact with us.

1. Who we are

FESCA is an International Non-Profit Association registered in Belgium (Registration No. FOJ 15454).
Website: https://www.fesca-scleroderma.eu
Email: info@fesca-scleroderma.eu

2. What personal data we collect

We may collect the following types of personal data:

  • Name, email address, postal address, phone number

  • Payment information (if you make a donation)

  • Any health-related information you voluntarily provide

  • IP address and usage data (via cookies – see our Cookie Policy)

3. How we collect your data

We collect personal data when you:

  • Contact us via forms or email

  • Subscribe to our newsletter or updates

  • Register for our events or activities

  • Make a donation

  • Share your story or experience

4. Legal basis for processing

We process your data under the following lawful bases (as per GDPR Article 6):

  • Your consent (e.g. subscribing to our updates)

  • Contractual necessity (e.g. registering for an event)

  • Our legitimate interests (e.g. managing our network and communication)

  • Legal obligation where applicable

5. How we use your data

We use your data to:

  • Respond to your inquiries

  • Process donations and send receipts

  • Manage communications and newsletters

  • Organise events and provide resources

  • Understand how our website is used (aggregated analytics)

6. How long we keep your data

We keep your personal data only as long as necessary for the purpose for which it was collected.
Data submitted via contact forms is retained for up to 12 months.
If you subscribe to our communications, we retain your data until you unsubscribe.

7. Data sharing

We do not sell or trade your data.
We may share your information with trusted third-party service providers (e.g. email platforms, donation processors) strictly for the purpose of providing our services.

8. Your rights under GDPR

You have the right to:

  • Request access to your data

  • Request correction or deletion of your data

  • Withdraw your consent at any time

  • Object to processing of your data

  • Lodge a complaint with the supervisory authority

9. Supervisory authority

If you are based in the EU and wish to lodge a complaint, you can contact:
Gegevensbeschermingsautoriteit (GBA) / Autorité de protection des données (APD)
https://www.gegevensbeschermingsautoriteit.be

10. Contact us

For any questions or requests related to this policy, contact:
Email: info@fesca-scleroderma.eu