List of FESCA Members
Belgium (Dutch)
CIB-Liga vzw
Lindenlaan 15
B-3680 Maaseik
Tel: +32 89 73 41
secretariaat@cibliga.be
www.cibliga.be
Belgium (French)
APSB – Association des Patients Sclérodermiques de Belgique
Rue Du Pont à Rieu 13 i
7500 Saint Maur
Tel: 0032 485 178297
sclerodermie@clair.be
www.sclerodermie.be
Bulgaria
Bulgarian Organization for Patients with Rheumatic Diseases- BOPRD
Croatia
HUOS – Hrvatska udruga oboljelih od sklerodermije
Cyprus
Αντιρευματικός Σύνδεσμος Κύπρου (Cyprus League of People with Rheumatism)
Onisilou 16, app, Aglantzia
2121 Nicosia
Cyprus
Tel: +357 22 428285
Fax: +3851 36 48 143
cyplar@cytanet.com.cy
www.rheumatism.org.cy
Czech Republic
Revma liga Revmatologický ústav
Na Slupi 450/4, 128 50 Praha 2
Czech Republic
Tel:+420 731 644 350
michaela.linkova@revmaliga.cz
www.revmaliga.cz
Finland
Systeeminen skleroosi ja Morfea ry
Matsäkedonkatu 33 as 2
24100 Salo
Tel.: +35 8407383563
E-mail:puheenjohtaja@sklero.org
https://www.sklero.org/
France
Association des Sclérodermiques de France
Chez Christian Damon
136 rue de Mouises
45130 BACCON
Tel.: +33-(0)820 620 615
info@association-sclerodermie.fr
www.association-sclerodermie.fr
Germany 1
Sklerodermie Selbsthilfe e.V.
Am Wollhaus 2
D–74 072 Heilbronn
Tel.: +49-7131- 390 24 25
Fax.: +49-7131- 390 24 26
sklerodermie@t-online.de
www.sklerodermie-sh.de
Germany 2
Scleroderma Liga e.V.
Michaela Sachsenhauser
Ötzstr. 24
D-85457 Wörth
Telefon: +49-8121-225 9705
E-Mail: verein@scleroliga.de
Greece
ELEANA-Hellenic League Against Rheumatism
Tel: + 30 210 8237302
Hungary
Országos Scleroderma Közhasznú Egyesület
7632 Pécs
Aidinger J. u. 40. VIII. em./31.
Tel.: +36-306377491
szkleroderma@gmail.com
www.szkleroderma.hu
Israel
INBAR Association
Arlozorov 10
Ramat-gan
Israel
Tel.: +972 03-5613832
office@inbar.org.il
www.inbar.org.il
Italy 1
AILS – Associazione Italiana Lotta alla Sclerodermia onlus
c/o Azienda Ospedaliera Gaetano Pini
Via G. Pini, 9
20122 Milano
Tel.: +39-0258296675 /74
Cell. +39-3387193491 – +39-3386694061
ails@tiscali.it
www.ails.it
Italy 2
ASSMAF – Associazione per lo studio della Sclerosi Sistemica e delle Malattie Fibrosanti
Viale G. Pieraccini, 18
50139 Firenze
Tel.: +39-055 7947512 – +39-348 6061976 – +39 334 1176566
Fax.: +39-055 4376437
associazione@assmaf-onlus.org
www.assmaf-onlus.org
Italy 3
APMARR - Associazione Nazionale Persone con Malattie Reumatologiche e Rare
Via Miglietta, n. 5
73100 Lecce (LE)
c/o ASL LECCE (Ex Opis)
Tel.: Fax 0832 520165
info@apmarr.it
www.apmarr.it
Italy 4
GILS – Gruppo Italiano per la Lotta alla Sclerodermia Padiglione Litta
Via Francesco Sforza 35
c/o IRCCS Ospedale Maggiore Policlinico Mangiagalli
20122 Milan MI
Tel.: +39-02-55199506
Fax.: +39-02-54100351
gils@sclerodermia.net
www.sclerodermia.net
Netherlands
Nationale vereniging voor LUPUS, APS, Sclerodermie en MCTD
Postbus 5056
3502 JB Utrecht
Tel.: +31-88-0157000
info@nvle.org
www.nvle.org
www.wereldsclerodermiedag.nl
Norway
Norsk Revmatikerforbund
P.O.Box 2653 Solli
N-0203 Oslo
Tel.: +47 22 54 76 00
post@revmatiker.no
www.revmatiker.no
Portugal 1
ADPE – Associação Portuguesa de Doentes com Esclerodermia
Quinta da Oliveira, Bloco A, R/C Dto
4950-534 Monção
Tel.: +351 961 289 627
associacao.apde@gmail.com
www.esclerodermia.pt
Portugal 2
Liga Portuguesa contra as Doenças Reumáticas
Rua Quinta do Loureiro, 13 – Loja 2
1350-410 Lisboa
Tel.: +351 21 364 87 76
Tel.: +351 92 560 99 37
lpcdr@lpcdr.org.pt
www.lpcdr.org.pt
Romania
Asociatia Pacientilor cu Sclerodermie din Romania
Bucharest
Tel.: +351 21 364 87 76
Tel.: +351 92 560 99 37
contact@sclerodermie.ro
www.sclerodermie.ro
Spain
AEE – Asociación Española de Esclerodermia
C/ Rosa Chacel, 1
28230 Las Rozas – Madrid
Tel.: 911 649 908
Tel.: 674 406 688
info@esclerodermia.com
www.esclerodermia.com
Sweden
The Swedish Rheumatism Association Reumatikerförbundet
Switzerland
Sclerodermie.ch
3000 Bern
Tel.: +41 77 503 51 42 (French)
Tel.: +41 77 502 18 68 (German)
Tel.: +41 77 501 67 59 (Italian)
info@sclerodermie.ch
www.sclerodermie.ch
United Kingdom
Scleroderma and Raynaud’s UK
Bride House
18-20 Bride Lane
EC4Y 8EE
London
Tel. within UK: 020 3893 5998
Tel. abroad UK: +44 20 3839 5998
Tel.: +44 20 7000 1925
info@sruk.co.uk
www.sruk.co.uk
