6-7 March 2026, Athens

FESCA, in collaboration with the World Scleroderma Foundation, proudly hosted the 9th Patient World Congress alongside the 9th Systemic Sclerosis World Congress. Since 2010, the Patient Congress has grown into a key international platform for the scleroderma community, bringing together patients, advocates, and experts to exchange knowledge, share experiences, and strengthen connections.

The 2026 edition welcomed participants from across Europe and beyond for two days of learning, interaction, and community building. Designed by patients for patients, the programme combined scientific updates with practical guidance and meaningful patient perspectives.

Key Outcomes for attendees

A renewed sense of hope and confidence in ongoing research and future treatments

Increased knowledge and understanding of the disease

Practical tools to support daily life and self-management

A strong sense of community and peer support

FESCA remains committed to building on this momentum, continuing to deliver patient-centred events that respond to the evolving needs of the scleroderma community. We thank all participants, speakers, and partners who made the 2026 Congress a meaningful and inspiring experience.

We look forward to welcoming you to the 10th edition in 2028, Florence, Italy.

Best regards,
The Organising Team of the Patient Congress

Congress Report

The 9th Systemic Sclerosis Patient World Congress brought together attendees, speakers, moderators, organisers, and sponsors to create an unforgettable event. We are delighted to share the Congress Report, designed to capture the knowledge, experiences, and atmosphere of the event.

The report includes:

Written summaries of all sessions.

Key information on attendance and participant feedback.

A comprehensive overview for both attendees and those unable to join.

We hope this report serves as a lasting resource, reflecting the discussions, learnings, and connections made during the Congress.

Congress Sessions Recordings

Did you miss the event or want to revisit your favorite sessions? Recordings are now available to help you catch up and explore all the insights shared.

Explore expert presentations, roundtable discussions, patient-led sessions, and practical workshops delivered during the Congress.